Trouble with the Feeding Tube

They needed to insert a feeding tube in Grayson's nose and into his stomach. They need this because Grayson needs to take in 4 liters of "GoLitely" to clean out his bowels. However, he cannot seem to swallow it without gagging. So, the feeding tube was the next option. However, it keeps getting stuck in his sinuses. So, not that the feeding tube is not working, they are consulting with the doctors to see what we can do to get him cleaned out.

Here is Grayson with the Child Life Specialist, Megan, who has helped him work through this difficult situation.